So another month has gone by in the blink of an eye. I'm kind of glad to be inching closer to spring but also amazed at how quickly time can fly by. Yet, some days feel so long! I guess that's where the saying "the longest shortest time" comes from. (It's also the name of a parenting podcast.) As I reflect on that idea, like most parents, I'm hit with the reality that our children are growing up so quickly. Just yesterday in fact, Facebook reminded me of this memory and photo from 5 years ago . This was taken when A was just 9 months old, E was 3 years old, and I was about 3 months away from giving birth to our third daughter. I love looking back at these photos and seeing their precious little faces. Most other parents, that have children older than ours, will often tell me, "Cherish these moments!" "They grow up so quickly!" "I wish mine were young again!" That seems like such great, valid advice. Yet, a lot of the time, I am looking toward the future. I want to leave these hard days behind. I pray that our daughters' health struggles will improve and the quality of our lives will improve. I look forward to cherishing moments together in the future when they are a bit older and hopefully life is more manageable. I dream and pray for a day where food allergies, feeding tubes, incontinence, GI struggles, chronic pain, Ehlers-Danlos Syndrome, autonomic dysfunction, mast cell activation syndrome, anxiety, autism spectrum disorder and sensory processing disorders no longer prevent us from living the life we dreamed of with our daughters. In the meantime, I will keep fighting everyday to make that dream come true because our daughters deserve those memorable moments. I also vow to take each day as a gift and a blessing, to make the little moments count, and to celebrate the small victories. So on that note, we do have a few small victories to share! Our daughter, A, had a food allergy test and oral challenge at the hospital a few weeks ago. She passed it with flying colors and has officially grown out of all her food allergies! She is cleared to drink milk and eat dairy products! She couldn't be more thrilled to be eating pizza with cheese on it! This week is also Feeding Tube Awareness week, and the perfect time to celebrate the fact that our oldest daughter, E, has had her G-tube for about 16 months now and it has done amazing things for her! She has been growing and gaining weight like never before! At her recent appointment with the endocrinologist, we were told that E was doing amazing and that we don't have to come back until she hits puberty! Yay! One less specialist to follow-up with is great news!
There have been other appointments and updates to share, but for now, I'd like to end on a positive note and stay in this happy place for a moment. As always, thanks for reading and for all your support!
Nicole
2/7/2018 06:08:00 pm
Beautiful photo of the girls! Lots of love to you guys!
Bea Lyons
2/8/2018 05:43:16 am
Keep up the good work momma’! Sending hugs and happy vibes 🤗🤗🤗
Erica Techeira
2/8/2018 10:25:36 am
well written. very hard to describe those conflicting emotions. we want to move forward, but moving forward means entering another season for us and for them. facing unknowns and hoping you are a little more savvy & stronger this time. As parents struggling with chronic illness there are also the fears that we may decline even as our children thrive.
Alison
2/9/2018 12:23:11 pm
This is beautiful Bek. A good reminder for all of us to cherish each precious moment, even when things aren’t exactly how we want them to be. I’m so happy to hear about the progress that girls have made! That’s such wonderful news. 💜
Caitlin
2/26/2018 08:20:55 pm
Days are long, years are short, right? I can only imagine how long your days must feel, Bek. Those girls are so lucky to have you as their mama! Those sweet little faces are the best! Comments are closed.
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AuthorHi, I'm Rebekah! I'm a wife, architect, teacher and mother to 3 amazing daughters! Thanks for stopping by my blog, RAISING ZEBRAS! Archives
February 2018
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